Well, yesterday started off in kinda a bum way. After Heath and I showered, and came back to the room, we saw that Kimble did not look good. Surgically, he was fine, but he was simply lying there, with a blank stare on his face, completely detached from any responsiveness. In conjunction with that, he was extremely swollen from fluid retention. Not only that, he didn't have an appetite. All of these things made me worry.
So we talked with our Attending, Dr. Shannon Buckvold. We actually had her as our attending the last week we were in the hospital in December, so it was nice to have her around again. Also, Jesse, the Fellow doctor, is here with us too. Jesse saved Kimble's life multiple times, the night after his first heart surgery. So, it was nice to have familiarity with us this time. They know Kimble. They know us. It makes it so much easier to trust what they say.
Ok, so back to talking with Dr. Buckvold. After some conversation about what Kimble was doing and how he was reacting to things, she suggested that his overabundance in fluid retention, combined with effusion (swelling) around the liver, pressed on his stomach and made him feel full. This reaction is similar to what they see in patients with the Fontan procedure, which is the next stage surgery after the Glenn, where the bottom half of the body's bloodflow is rerouted directly to the lungs.
Because Dr. Campbell closed off the ASD (the hole between the two atriums of the heart), this could have made Kimble's recovery very rocky. Instead, Dr. Campbell had ultimate wisdom in Kimble's case, and it's been positive for Kimble. However, they now need to get rid off all the swelling before they can take the next step, which is to remove his chest tubes, his RA line (a pressure monitor directly in his right atrium) and his central line in his groin.
Another reason for the delay in removing everything, was that they needed his blood to be clotting. Even with his blood transfusions, he still has too thin of blood for them to remove the tubes and lines. It's imperative that it clots. A bleed from the heart is very very bad.
Anyway, seeing Kimble totally detached and unresponsive in the morning, it was very troubling. However, we started him on a double double dose of diuretics, as well as some plasma to boost his blood, and an extra day of resting, recovering, and eating.
I held Kimble many times through the day. He loves to be held.
All that playing made him tired. He slept, with one arm holding his toy.
He had an uneventful night. Slept through most of it, which is better than he does at home. The plan for today is to get more plasma into him, followed by removing his chest tubes and RA line...hopefully!